Monday she has physical therapy. We'll also get an appointment date with the neurologist that day. Three studies will be done, plus the evaluation by the doctor, so we're expected to be there most the day. Oncology and neurosurgery are working to get her scheduled back in Oakland as well. Urology appointment is on the 17th. Occupational and speech therapy still need to be worked into the schedule.
Tomorrow is April 5. And Easter. In 2008, Easter was the one holiday we had with our sweet Arianna. We spent it in the NICU, and brought her little Easter dress to the unit. (Which was a doll dress that came with the girls Easter dresses). She came home from the hospital the next day, and passed away on the 5th of April that year. This year, they fall on the same day. Seven years have gone by since we experienced the worst day of our lives, 7 years we've been living without our child. This year, we're trying to maneuver our way through a new cancer diagnoses in another one of our children, and feeling the sting and memories of Ari's death that seem to rise to new levels around this time of year, and the days are feeling pretty paralyzing at times. It just feels to be too much at times. But we are determined, and somehow, not with our own strength, will get through it like we always have. Just pray for us!
Precious Arianna in her Easter dress. 2008
On another note, last week we decided to get away for a bit, and went to California. We took a whale watching tour, and seen dozens of dolphins and about 12 humpback whales. The experience was amazing, and all the kids had smiles on their faces almost the entire time. Including Sierra. The next day we spent on the beach in San Francisco while the kids played in the sand, chased the waves, found sand dollars, crabs and those little sand crabs that the boys love to catch. It was a great get away, and so, so needed!
Sierra also did another interview for the Record Courier. She was so brave sitting with the reporter and telling her story, her fears, her pain and her goals. I let her lead the conversation and talk about whatever she was comfortable sharing, and she did amazing.
My doula classes are supposed to start on Monday. I'm going to try and attend this semester, but I'm worried about being able to keep up....both with time and the emotional part.
For the locals: One of Sierra's best friend's family is hosting a fundraiser at The Moose and Squirrel and The Grill Next Door here in Gardnerville. It's on the 11th at 2:00, and will be raffles, bbq dinner, and more. We will be there, and would love to have you out.
Lots going on. Please just keep praying for Sierra, for the kids, for Ken and I to have the strength and endurance to keep doing what we need to do. For us to be patient with each other, with the kids, with the medical staff. For better days for Sierra. For less pain, less headaches. For continued healing, and for clean scans.
Thanks for all the love, prayers and support.
Sierra's most recent interview with the Record Courier
Some of Makenley's one year pictures.....
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