Thursday, October 16, 2014

Today is SIDS and Pregancy and Infant Loss Awareness Day.

Today is SIDS and Pregnancy and Infant/Child Loss Awareness Day.

A day of remembrance for all of our sweet babies. Whether it's miscarriage, stillbirth, SIDS, or any other type of death.

Each year on October 15, at 7:00 pm, in all time zones, people light candles to participate in the 'Wave of Light'. Events take place all over the world. Memorial walks, candle light vigils, etc.

Our family always participates. We light candles. We hang out together as a family, and allow everyone to share whatever is on their hearts. We pray for all the babies, and the families who ache so badly for them. We let the kids pray. We let them talk about their sister, or ask questions if they want to. We cry. We smile and laugh. We long for our babies. We remember. We snuggle and hold each other tight. We thank God for the time we had with our missing babies and the time we have with our six living babies.

It seems to be one of the few days that we allow ourselves to feel and express our feelings without a filter. It's one hour of the year that we lay our masks down. That we give up fitting into society's one size fits all, three days to grieve, grief mold....we let go of the unrealistic expectations that we should be over her loss. Or that it shouldn't hurt, still.

Reality is, it hurts....still. And on days like today, where friends pictures from all over the world start popping up on my Facebook newsfeed as they light their candles....it gets a little raw. The numbers are insane. Too many babies. Too many families trying to survive without their babies. This 'club' is just too large. Too large for it not to be talked about, not to be more funded for research. It makes no sense.

Different continents, countries, time zones, languages.....it's amazing to me how the one common thread we have as grieving parents, makes us more like family. Of course, I would prefer not to have met any of these families. I would prefer to have all my babies, and for them to have theirs. But I am incredibly thankful for this 'family'.

Tomorrow we'll put our masks back on. But for today, it's been nice to be able to lay down our masks, and be real and raw....along side the thousands of other grieving moms and dads and brothers and sisters and grandparents.

Thinking of all these precious babies, and praying for the families who miss them more than words could ever express.

Some pictures from today....

From Reno, NV

From Perrysburg, Ohio

From Dallas, Texas

From Chapel Hill, North Carolina

From Burlson, Texas

From Illinois


This year, Niagra Falls was lit pink and blue for Pregnancy and Infant Loss Awareness Day!

These ones are our display. A baby's name on each candle.















Sunday, October 12, 2014

October update.

Hi all,

Hope everyone is doing well. Been a little while since I've posted an update. Life......it just gets away from me and before I know it, it's been another couple months in between updates.

The family is doing well. Soccer season is wrapping up....we have two tournaments, and then we're done. The season was hectic, but not bad. It's safe to say, that we're all ready to be done, though. School is going well for all of the kids, and everyone is currently healthy. Now they're looking forward to ski season.

Makeneley is now 7 months old, and an absolute joy. Such a happy little girl with more personality than she can contain. She sometimes says 'mama', gives kisses, fives, waves hi sometimes, and loves to interact with others. She hasn't gotten any teeth yet, and isn't really interested in foods yet, but she's growing well, so we're not rushing her. Last time we weighed her, she was 13.5 lbs.

 



 



 

 


October is here again, which is Breast Cancer Awareness Month, Domestic Violence Awareness Month, SIDS Awareness Month, as well as Pregnancy and Infant Loss Awareness Month. This October has been busy for us. In September, we were suggested to write a proclamation for Douglas County for SIDS Awareness Month and Pregnancy and Infant Loss Awareness Month to help raise awareness on a local level. A friend helped with the proclamation, and it was submitted. It was accepted by our local commissioners, and signed and presented on October 2nd, at the old court house in Minden for Douglas County. We gave a quick speech, and told a bit about Arianna and our experience. Our Governor, Brian Sandoval, also took it on and declared October as Nevada SIDS and Pregnancy and Infant Loss Awareness Month, and signed another proclamation. We presented this proclamation at a Time For Remembrance memorial walk in Reno today. We've done 2 interviews with the local newspapers so far, and while in the middle of one newspaper interview, received a package with a letter from President Obama. The word is thankfully getting out......faster than either of us anticipated. But we're thankful for all of the support we've received through it all, and are hoping to somehow continue raising awareness, and hopefully working more resources into our community. The wheels are turning......plans are being made, and support is growing. It's been an incredibly emotional October so far....but productive and filled with adrenaline and excitement.






 
 
Article the Record Courier posted. Carson Valley Times article will be posted on Tuesday, in time for Pregnancy and Child Loss Awareness Day/National Wave of Light.