We received a call from the doctors in Cincinnati.
They reviewed all of Sierra's records, imaging and slides. As for the brain cancer, they are all in agreement that it is completely a grade 2 diffuse astrocytoma, with no portions appearing to be a higher grade. So, treatment for now remains the same.....taking the wait and watch approach. The lesion on her hypothalamus is not showing characteristics of being another astrocytoma, which is also good news. They suggest her still having frequent MRIs, and monitoring things very, very closely. He suggests finding another neurologist who specializes in pediatric migraines and neuro oncology.
The kidney: First MRI that was done in March, which discovered the lesion on her kidney, showed there to be blood flow, which appeared to be another tumor. Ultrasound showed it to be a 'simple cyst'. Further studies and more specialized pathology from Cincinnati are now saying there is blood and it is a 'complex cyst'. Which raises a bit more concern.
Recommending another ultrasound and possibly a ct scan within the next couple weeks to check for growth. And then, follow up ultrasounds every three months if there is no growth.
We are feeling relieved that we have more doctors who are agreeing on the wait and watch approach when it comes to the cancer.
Thanks for all the continued prayers. Please continue to pray for her. Not out of the woods, but thankful that right now she is stable. Very thankful.
Friday, August 21, 2015
Monday, August 17, 2015
Summer, soccer, MRI results.
Hi all, hope everyone is doing well.
It's the end of summer, start of fall season. The busiest time of year for our family. School started today, soccer started last week. Five kiddos in school now. Sierra is in 8th, Kai'Lani in 5th, Phoenix in 4th, Zion in 1st, and Bryce in kindergarten. Sierra went to school for the first time since her surgery today, and did well. We're not going to push her, and the school is making some accommodations for her schedule, but we're beyond thankful that she is strong enough to go back as much as she can. And incredibly thankful for a school district who is being flexible with her and have made it abundantly clear that her health and recovery is top concern.
Soccer season started two weeks ago. We have four playing this year. Our lives get a bit chaotic from now till October.
Last time I posted, Phoenix had the issue with his blood sugar. I'm happy to say that he has no more issues, and has been healthy since. Sierra was in the hospital about a week and a half ago, for some exaggerated symptoms along with some new ones. An MRI was done last week, and the results came back today. Thankfully, no changes in tumor cells. She has a sinus infection, so we're hoping that's the cause of her increased headaches. Antibiotics start tomorrow....hoping for a difference.
Other than that, that's about it. Received an email from the Drs. in Cincinnati today saying they received all her records, and they are being reviewed this week by the neuro oncologists, neuro radiologists, and neurosurgeon teams.
Here are some recent pics of the kids.
It's the end of summer, start of fall season. The busiest time of year for our family. School started today, soccer started last week. Five kiddos in school now. Sierra is in 8th, Kai'Lani in 5th, Phoenix in 4th, Zion in 1st, and Bryce in kindergarten. Sierra went to school for the first time since her surgery today, and did well. We're not going to push her, and the school is making some accommodations for her schedule, but we're beyond thankful that she is strong enough to go back as much as she can. And incredibly thankful for a school district who is being flexible with her and have made it abundantly clear that her health and recovery is top concern.
Soccer season started two weeks ago. We have four playing this year. Our lives get a bit chaotic from now till October.
Last time I posted, Phoenix had the issue with his blood sugar. I'm happy to say that he has no more issues, and has been healthy since. Sierra was in the hospital about a week and a half ago, for some exaggerated symptoms along with some new ones. An MRI was done last week, and the results came back today. Thankfully, no changes in tumor cells. She has a sinus infection, so we're hoping that's the cause of her increased headaches. Antibiotics start tomorrow....hoping for a difference.
Other than that, that's about it. Received an email from the Drs. in Cincinnati today saying they received all her records, and they are being reviewed this week by the neuro oncologists, neuro radiologists, and neurosurgeon teams.
Here are some recent pics of the kids.
Zion, 1st grade.
Bryce, Kindergarten
Phoenix, 4th grade
Sierra, 8th grade
Kai'Lani, 5th grade
Phoenix's 9th Birthday!
First day of school. Pau-Wa-Lu Panther spirit!
Our big kids helping Bryce on the first day. Waiting for his first bus ride. <3
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