People have been asking about the blog, and any new updates. I was taking a pretty extensive and time consuming class, and have stepped away from the blog and social media while taking it. Plus, there haven't been any significant updates, so there wasn't much to post about.
Sierra has okay days and not so okay days. Her headaches and dizziness seem to be spacing out some. She still gets some numbness, and now has been experiencing some sleep paralysis....where she wakes up, can hear everyone talking, but is unable to move her body. More than likely not a big deal as far as risks or anything like that go, but it is frightening for her when she experiences it. She had another EEG yesterday, which came back as normal with no seizures. Next one will be in 3 months. She's due for another MRI in a couple weeks, and then will head back to Oakland to see the neurosurgeon and oncologist. She was put on a heart monitor for a month, to monitor her rapid heart rate and murmur to make sure that the tachycardia was fixing itself, which it has been. We returned the monitor this past week. The med changes that we made last month seem to be working well for her, so we're going to stay with these current meds and doses for now. She's done with homeschool, and has been taking a break from physical therapy, but will be going back, as her right side is being affected some, again.
Last month, we got word that she 'qualified' for Make A Wish. Definitely bittersweet. We're beyond thankful she gets to have a wish granted. But we're sad that she meets these 'qualifications'. She is meeting with the "Wish Makers" tonight, and this process will be started. Looking at it as a huge blessing. But wish she had her health instead.
Other than that, we're just trying to keep living and making the most of each day, in the midst of it all. Trying to adjust to this new reality, and trying to keep an ounce of normalcy for our other kids as well. The other kids are doing well, and enjoying summer break.
Posting some pictures from the past few weeks. Enjoy.
Last day of preschool ever, for Bryce. With his fabulous teachers.
Hanging out while Sierra was having her EEG done.
At the carnival.
Child after my own heart. Future photographer. :)
Fishing at Lake Tahoe
Phoenix, kayaking Tahoe
Kai'Lani enjoying the arctic cold water. :)
Bryce and his gator.
Zion, making sand angels.
Makenley loves the water!
Makenley, and a couple of her body guards.
Talent and patience.
Little beauty.
Mothers Day
Zion and Bryce admiring Bryce's catch at the fishing derby.
Silly boys.
Brothers. <3
Riding the carousel during the Carson Valley Days parade
Sierra and Miss Lake Tahoe
At Yogurt Beach
Phoenix teaching Makenley how to play soccer
No comments:
Post a Comment