Pulmonologist apt.

Bryce met with the pulmonologist today. Not really sure what will come from it. The appointment was over 2 hours long, and all we did was discussed his history in detail. She said that as usual, he has several of the symptoms of Cystic Fibrosis, some of them being top indicators....but then he doesn't have others. The sweat test that was done here was still within normal limits at 35. Anything over 40 is probably positive diagnosis. So, she still wants to retest him in Oakland. In the mean time, she's added daily doses of steroids to his list of daily meds that he's already taking....which we're really not happy about. On top of that, she's changed his inhaler/nebulizer meds, and wants him on it for 4 weeks, which is when we see her again. She's ordered other labs to be done, as well as some stool and urine studies...which will also help rule/confirm cystic fibrosis. depending on those results, and the results from the steroids, we'll know what other tests will need to be done in Oakland at the time the sweat test is done. Feel like we're all just grasping.
Thankfully, tonight he seems to be feeling good. Clinging to that.
Thanks as always for the prayers.

 

 

Having his sweat test done. 07/09/2013